Update #6, 9th Sept 08

Every law of nature must yield to faith... Only Believe...

Well a lot has happened since the last update...

He was taken to theater on the 2nd of september and had his Tracheostomy done. The operation went really well and he has been a whole new baby boy ever since! Its seems to us that ever since he has been able to breathe comfortably everything else that we thought we were gonna have to worry about has just faded away... He is so much more happy and loves to be cuddled and is very very alert!

He went back to theater today (9th sept) because he had to have the first change of the tube in his throat done in theater. From here on we are allowed to start changing the tube ourselves as we have to learn how to do it before we leave for home... And its our understanding that we will have to take him into theater about once every 4 to 6 weeks to have it looked at again because as he grows the tube will need to get bigger also...

We saw another photo from the surgeon today that she took with her tiny camera of his larynx and vocal chords and they are looking a lot better than they were... His larynx is looking a lot smaller and it looks a lot less inflamed and we can actually see a passage through there now. In the last photo you could hardly see a clear path through for the oxygen to travel, so already with a bit of pressure taken off his throat his body is getting sorted out.

So from here we will get him feeding and once we are confidant with changing the tube we are outs there! In a weird kinda way we have really enjoyed our time at the hospital, we have meet an awesome bunch of people who we will no doubt keep in touch with for years to come and even though the reason we are at the hospital is really hard the time there has been a time in our life which we have come to value, we have to been opened up to world that we never knew existed.

Thanks again for all your prayers and love. Gods hand has been on everything. Please continue to pray for the following;

- firstly that he would breast feed well and do so quickly

- secondly, that his airway would continue to open up in his throat and that full movement would be restored to his vocal chord so that the tracheostomy would be out and he would be breathing normally within a couple of months!

p.s if you would like to see some pics, check out Amberley's facebook page, she has the most recent ones there... I will load some more up on the website soon for those of you without facebook...

Thanks so much,

God bless,

Josh, Ambz & Elijah